About us
Our Beginning
Alexandra’s Mission was born out of love, loss and a deep commitment to making a difference. When our beloved sister, daughter and friend Alexandra passed away at just 23 years old from an undiagnosed cardiomyopathy, those closest to her felt compelled to act.
With the help of her great friends, Alexandra’s family have established Alexandra’s Mission to honour her memory and help prevent the incidence of Sudden Cardiac Death (SCD) in young Australians and its devastating impact on their families.
Alexandra (top, second from right) and her friends
What We Stand For
Integrity & Transparency
Every donation given to Alexandra’s Mission truly goes where it’s needed most: to life-saving research.
100% Not-For-Profit
Alexandra’s Mission is committed to the principle that 100% of all public donations go directly to funding research across Australia. We absorb all administrative costs, so every donor can be confident their contributions have maximum impact.
Research-Led, Future-Focused
We partner with and support Australia’s leading cardiac research institutes to fund investigations into Sudden Cardiac Death (SCD), inherited heart disease, genomics, and genetic-counselling for families affected.
Why You Matter
Every gift, every volunteer hour, every share of our message makes a real difference. When young lives are lost, often suddenly and without any warning, it rips through families and communities.
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We believe that together, we can spread awareness about cardiomyopathy and fund research to save lives. Cardiomyopathy is a leading cause of sudden cardiac death. In Australia alone, seven young people aged 1-35 die suddenly each week. ​​Whether you choose to donate, fundraise, spread awareness or simply carry Alexandra’s story with you, you’re playing a vital role in saving young lives.
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If you’d like to learn more about where your donation goes, how research is selected, or how to get involved, we’d love to hear from you.
Our Mission
Our mission is to raise awareness of cardiac conditions in young people and to provide Australians with facts that could save lives, all in honour of Alexandra.
We are focused on the prevention of Sudden Cardiac Death (SCD) in young people and its devastating impact on Australian families.
Awareness and Advocacy
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Raising public, medical community and Government awareness of the incidence of Sudden Cardiac Death (SCD) amongst young people in Australia.
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Obtain recognition that SCD is a public health emergency that requires a properly funded national response and plan of action
Research and Prevention
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Help identify young people at risk of SCD before it occurs;
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Help identify the genes that cause cardiomyopathy; and
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Uncover better processes for the early detection of these genes.