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Alexandra was a bubbly, ambitious and seemingly healthy 23-year-old when she tragically passed away in her sleep. ​

The cause was later discovered to be Arrhythmogenic Cardiomyopathy, a genetic heart condition she never knew she had.

 

In the aftermath, her family learned they were far from alone. Determined to change that, they founded Alexandra's Mission — to honour her memory, and to fight for every family who deserves a different outcome.

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Alexandra had a passion for life, an infectious laugh and an energy that lifted every room she entered.

 

Just a few months into her first job after university, she was thriving — creating new friendships, travelling the world, and determined to make her mark. Nobody knew that underneath it all, a silent condition was present.

When Alexandra passed away in her sleep, her family had no idea a seemingly healthy 23-year-old could be taken this way. The cause was later found to be Arrhythmogenic Cardiomyopathy; a condition that had gone completely undetected.

The diagnosis brought another revelation: several of Alexandra's relatives unknowingly carried the same condition — a life-saving discovery that may never have been made otherwise.

Cardiomyopathy claims the lives of seven young Australians every week. Determined to change this statistic, her family and friends founded Alexandra's Mission — to fund research, drive awareness, and make sure other families get the chance they didn't.

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Alexandra’s Mission was established in memory of Alexandra Thoms, with a mission to help prevent sudden cardiac death in young Australians. Through awareness, education, research and greater access to cardiac screening, we’re working to create a future where more young lives can be protected.

Alexandra’s Mission is a registered Australian charity with DGR 1 status, meaning donations are tax deductible.

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