Over $130,000 raised to date.

Since 2024, Alexandra's Mission has raised over $130,000 going toward research and awareness that could prevent another family from experiencing Sudden Cardiac Death.

Through initial community fundraising in 2024, we have already been able to fund vital research at leading institutions including the Centenary Institute, Garvan Institute, Murdoch Children’s Research Institute, the Heart Foundation, and support advocacy at the Cardiomyopathy Association of Australia & New Zealand (CMANZ).

We completed the Heart Foundation's 20km Coast Trek walk in 2024 as our first fundraising effort. We raised over $45,000 and supported multiple research institutes across Australia.

Why you matter

Every gift, every volunteer hour, every share of our message makes a real difference. When young lives are lost, often suddenly and without any warning, it rips through families and communities.

Whether you choose to donate, fundraise, spread awareness or simply carry Alexandra’s story with you, you’re playing a vital role in saving young lives.

If you’d like to learn more about where your donation goes, how research is selected, or how to get involved, we’d love to hear from you.

Research institutes that we support

Since our inception, the Alexandra’s Mission team has met with Australia’s leading research institutes to understand and support the work being done to prevent Sudden Cardiac Death in the young.

Following support from our initial fundraising efforts, we’ve had the opportunity to see firsthand how these teams are advancing research and improving early detection.

Murdoch Children’s Research Institute (MCRI) is the largest child health research institute in Australia. Based at the Royal Children’s Hospital in Melbourne, MCRI has over 1,800 researchers working across more than 150 diseases and conditions affecting children.

The Heart Regeneration and Disease Team led by Professors Enzo Porrello and David Elliott utilises stem cell technologies to create human models of cardiomyopathies as a platform to:

Better understand the causes of cardiomyopathies,
Develop new drug treatments for cardiomyopathies
Develop cellular therapies to treat cardiomyopathy patients in heart failure.

Their co-location with The Royal Children’s Hospital and multidisciplinary team of clinicians, scientists and patient advocates has enabled them to create a research pipeline that spans the full spectrum from patients in the clinic through to patient cells in a dish.

Alexandra's Mission is proud to support this research through funding for DSP Cardiomyopathy Stem Cell Models, helping to advance the team's work towards better understanding, treating, and ultimately curing this condition.

Led by Associate Professor Jodie Ingles, the Ingles lab at the Garvan Institute is advancing genetic and molecular understanding of heart disease. Her team is focused on finding ways to use cardiac genomics and genetic counselling to improve diagnosis management and care of families with inherited cardiovascular diseases.

One of the main research projects, “Elusive Hearts” is a gene discovery study, aiming to identify genetic causes of inherited heart disease, for families where no genetic cause has been identified to date.

Jodie’s team also lead a national study, IMPROVE-SCA, which seeks to improve outcomes and survivorship following sudden cardiac arrest in the young.

Alexandra's Mission is proud to support the Elusive Hearts study, helping the Ingles lab identify genetic causes of inherited heart disease for families who have not yet received a diagnosis.

The Centre for Cardiovascular Research at the Centenary Institute is dedicated to advancing precision medicine in cardiac health and providing essential support to the families affected.

Alongside groundbreaking research at the cellular level, the Centre facilitates genetic counselling and care, helping families understand their risk factors by funding genetic analysis.

This holistic approach not only aims to transform research into tailored care but also empowers families with knowledge and personalised interventions.

Alexandra's Mission is proud to support this work at the Centenary Institute, contributing towards Holter monitors and accompanying software to help detect arrhythmias in families at risk, alongside further funding for cardiomyopathy cell culture models research.

Victor Chang Cardiac Research Institute is Australia's leading independent medical research institute, dedicated to finding cures for cardiovascular disease. With its headquarters in Sydney and hubs in Perth, Melbourne and South-Western Sydney it is the home to more than 230 researchers working to undertake innovative, inclusive, collaborative, and cutting-edge medical research that improves the understanding, prevention, diagnosis and treatment of cardiovascular disease.

Dr James McNamara's research at the Institute focuses on the molecular mechanisms underlying inherited cardiomyopathies. Using human stem cell models, his lab investigates how genetic variants disrupt heart muscle function and seeks to identify new therapeutic targets for patients living with these conditions.

Alexandra’s Mission is proud to support Dr McNamara’s research into inherited cardiomyopathies, contributing to vital work that could improve how these conditions are understood, detected and treated - and ultimately help prevent more young lives being lost to sudden cardiac death.