What is cardiomyopathy?
Cardiomyopathy is a disease of the heart muscle that affects its ability to pump blood effectively. It can be passed on (inherited) from a parent through a faulty gene, known as a mutation. Globally, 1 in 250 people will develop a type of cardiomyopathy during their lifetime.
In Australia alone, seven young people aged 1 to 35 die every week from an undiagnosed heart condition.
What makes cardiomyopathy particularly dangerous is that many people experience no symptoms of it, and therefore it can go undiagnosed for years. In tragic circumstances like Alexandra's, it may go undiagnosed until it's too late.
When there are symptoms of cardiomyopathy present, they can resemble common, everyday issues. While symptoms can develop gradually, without early detection and treatment, the heart can deteriorate quickly.
Raising awareness is vital, especially among young people, parents, schools, and GPs. By sharing Alexandra’s story, Alexandra’s Mission aims to encourage early heart checks, support crucial research, and ultimately save lives.
Symptoms of cardiomyopathy
While symptoms of cardiomyopathy may not be present, or be subtle, there are some to be aware of.
Symptoms can be subtle and include:​
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Breathlessness
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Dizziness, light-headedness or fainting
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Fatigue
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Irregular or rapid heartbeat
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Chest pain
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Swollen ankles, legs and feet
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Bloating or inflammation in the abdomen from fluid build up
If you have concerns about your heart health, speak to your GP about getting your heart checked.